We are going to Madison on Sun/Mon and then have a follow-up echo with Dr. Shanti on Tuesday and an echo with Dr. Rios on Wed.
Also - the families from my yahoo group strongly suggested sending her file and copies of her echo to the top pediatric (cardio) facilities. Missy has been so awesome with helping us get in touch with the people at Stanford (she even called and pretended to be me to get more info! Thank you SO much Missy!!!) And - she has given us great questions to ask our heart groups on how to go about doing this all. We truly appreciate it :)
So, getting everything copied and researching where to send her records has kept us busy the past 2 days and has helped us feel that we are "doing something."
Thanks again for all of your your sweet msgs, prayers, and positive thoughts :)
xoxo
Alli and Dan
ps-I know these emails are frequent and long...but it feels good to document everything and keep everyone in the loop-even if it means flooding your inboxes :)
No comments:
Post a Comment